7-month-old Zachary, finds a bone marrow match

Posted March 15th, 2012 by Be The Match and filed in Patient Stories
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7-month-old Zachary and his mother Pam have already gone through a lot in his short life. Zachary was diagnosed with a rare autoimmune disease called IPEX when he was just a few months old. Doctors told Pam that he would not live more than a year if he did not receive a transplant.

Zachary’s family, including his 2-year-old sister Nelia, were tested, but like 70 percent of patients in need of a matching donor, Zachary did not have a donor match in his family. His doctors turned to the Be The Match Registry® to find an unrelated donor. A match was found and Zachary will be getting a transplant this spring, offering him a second chance at life.

On April 1, Zachary will have some extra support in the form of Team Zak Attack and Love for Bubbie, two teams formed by family and friends for Be The One Run.

5 Responses to “7-month-old Zachary, finds a bone marrow match”

  1. Melissa Ford says:

    I hope and pray all goes well with the transplant…God bless his little heart!

  2. Tamarra Weston says:

    I would like to say thank you to Be the Match foundation for all of your help and support to our family. I am Zak’s aunt, and the leader of team Zak Attack. I knew from the moment that Zak came in this world that he was very special to all of us. Zak is very strong, and sometimes I think stronger than myself. I love Zak with all of my heart and I know that God has a plan for him in our lives.
    Love my Zak Attack,
    Tamarra Weston

  3. Amanda LeVally says:

    I would also like to thank Be a Match foundation for also helping us the family out by finding a match for our Little Zak man! You really don’t know how much it means to us words can’t even begin to explain the excitement we all have for this! I really want to thank the donor for doing this! To who ever you are thank you so so much! We all have been praying for this since the day we found out about him needing a donor. It just proves that there really are guardian angels out there and you were our little Zaks! Thanks to you now his little sister Nelia will be able to play with him before she knows it and his new cousin Londyn who is only 5 months younger then him will be able to be his partner in crime! God bless you Donor! Once again thank you Be the Match if it wasn’t for you guys we wouldn’t have been able to get this far Thank you very much!

    Love you my Lil Stud Muffin,
    Auntie Mandy

  4. Manuela says:

    I am curious as to what hitsopal/medical facility diagnosed and treated her. I received a bone marrow transplant this summer from my partially matched sister. In fact, they told me that both my parents, my sister, or my children could potentially be used as donors. My sister was the best available related match, but not a complete match. Johns Hopkins Hospital in Baltimore, MD has pioneered the half-match donor protocol with alarming success. I had my transplant there and I am living disease free only 4 months later.

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