What is life after transplant like for you?

Posted October 30th, 2015 by Be The Match and filed in News
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Life after transplant is different for every person. Here, seven transplant recipients share what this journey has been like for them. What is life after transplant like for you? Share your thoughts on our Be The Match – Patients Connect Facebook page.

“I wake up every day and thank God for giving me another day!” – Dorothy

Emory_7167-small“My life before the transplant was sickle cell. Life on the other side is awesome. It took some time for me to realize that everything was going to be okay because I’d spent all of my life with sickle cell. I never, ever could have imagined that I would have the life I have now, that I would be able to do things I can now. Right now I feel like I can reach for the stars. I know I have a wonderful future. I’m looking forward to it.” – Constance

“I am extremely grateful to my donor for my second chance at life. I’m well, but fighting GVHD, which can be an annoyance. But I never allow myself to wallow in it because I am so grateful to be alive!” – Janine

Emory_8095-smallLife after the transplant was rough at first, but as the process went on, I started to feel better. It just takes a while. I’m surprised at how many people I’ve met who have been through something similar or knew somebody who’d been through something similar. I’ve made a commitment to myself that I want to try to help others as much as I can. I look forward to doing as much as I can to help, live a normal life and enjoy life just like anybody else would.” – Bob

“Awesome! Grateful! Wonderful gift from a wonderful lady. We are family now!” – Terron

Emory_9520-small“My husband and I work together to make each day count. When you’ve been through something like this it makes you really stop and think that it’s just wonderful to be here. We just count our blessings each day. We take one day at a time, because nobody knows what tomorrow is going to bring. We’re enjoying life the best we can.” – Patsy

“I can’t believe how grateful I am to my donor. I am so lucky not to have GVHD so far!” – Lila

Emory_9868-small“Here we are a year later, and I work 60 hours a week, I have a house, I have a new car. I’m dealing with the little side effects that come up with graft-versus-host disease that came on about a year after my transplant. So I have been having little bouts in the hospital, and having a few more appointments than usual. But, I’m getting married in a couple of months. Life is normal.” – Tom

4 Responses to “What is life after transplant like for you?”

  1. Karen Green says:

    I am almost 3 years post transplant and I wish I could sum up my experiences in a nice small package but I can’t. Recovery, GvHD, complications, life after transplant can be tough or have tough patches.
    I try to remember:
    Patience is incredibly important.
    To focus on what I have now and what I can do, rather than what I had and what I used to do.
    To have hope for future accomplishments and dreams, whether big or small.
    I know I am one of many who can all under understand, empathize and celebrate with me.
    And, that time heals.

    • Be The Match says:

      Karen, thank you so much for sharing this with us! We are so humbled that you have shared this insight for patients and transplant recipients so that they may have hope and patience throughout the long journey to recovery. Best Wishes, Be The Match

  2. Priscilla says:

    I appreciate that these are “feel good” quotes (not storied) but I had hoped for more detailed, honest stories. These types of things don’t do much to help people.

    I am 4+ years post transplant and recently returned to work. Recovery was a long road for me due to an unforeseen drug reaction. I have mild GVHD but dealing with fatigue is what I find most challenging. I would love to hear stories about challenges people face returning to work.

  3. Dennis Hough says:

    Hello Priscilla, I’m 6 years post allo stem cell transpant and did get cGVHD in my lungs. This past April I was successful in getting a double lung transplant. You can connect with me on facebook (I have a wise old owl as my profile pic. You can see my story on my caringbridge page http://www.caringbridge.org/visit/dennishough

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