New congress to address issues that will impact access to transplant

Posted January 24th, 2017 by Be The Match and filed in News
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On January 3, the 115th United States Congress was sworn-in in Washington, DC.  Although repealing “Obamacare” (also known as the Affordable Care Act) has dominated the news about this new Congress, it has a full plate of issues that it plans to address in the coming year.  Several of these issues will impact access to marrow and cord blood transplant:

  • C.W. Bill Young

    C.W. Bill Young

    Funding the CW Bill Young Cell Transplantation Program and the National Cord Blood Inventory through the end of Fiscal Year (FY) 2017 and for all of FY 2018. The CW Bill Young Cell Transplantation Program provides funding to support the Be The Match Registry®. And the National Cord Blood Inventory provides funding to support the collection and maintenance of cord blood units used for transplant.

    Each year, Congress must decide whether it will continue to fund these programs. This year Congress will finish the work it began in 2016 to appropriate funding through September 2017. It will also establish funding for October 2017 through September 2018. We need your help to advocate for continued funding of these programs that support our mission and help ensure patients have continued access to transplant.

  • Medicare payment reform. Both the U.S. House and Senate plan to address a variety of Medicare payment rulings in the coming year. These bills may include reforming hospital payments and could provide us with an opportunity to address the problem of Medicare rates not adequately covering the cost of acquiring bone marrow and cord blood for transplants.

We will seek comments this spring and fall from our advocate network to support efforts to improve Medicare reimbursement for transplant. Sign up to receive updates on these efforts.

  • Reauthorization of the State Children’s Health Insurance Program (CHIP) and potential Medicaid reform. The Congress also must review the CHIP program that provides health care coverage to millions of children across the country. This legislation may provide an opportunity to address ongoing concerns about State Medicaid programs as well.

We will continue to work with members of Congress to make sure that as policies evolve, Congress continues to protect access and remove barriers to life-saving transplants. And we’ll reach out to our advocates to support these efforts throughout the year.

Get involved with Be The Match® legislative advocacy

You can make a difference in the lives of patients with blood cancers. We invite you to sign up for our Be The Voice enewsletter to receive monthly updates on our advocacy efforts and how you can get involved to support our legislative advocacy efforts.

5 Responses to “New congress to address issues that will impact access to transplant”

  1. Cayce Chalk says:

    Please keep me informed.

  2. Jeff Lutner says:

    I am a donor recipient. Keep me informed. Need to stay on top of this.

  3. Pat Lutnet says:

    Please keep me informed.

  4. Laura Perlman says:

    I too am a recipient. We need to keep this support going it is lifesaving. Is their a petition to be signed? . Please keep me informed. Thanks

  5. Monica Sandgathe says:

    My husband is currently on the donor list trying find a match to save his life from MDS – this is an amazing program and thousands of families will be affected if this program does not get funding. You are talking about peoples lives.

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