Jason Carter Clinical Trials Program: One year of helping patients find clinical trials

Posted July 9th, 2018 by Be The Match and filed in News
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Every year, thousands of patients are diagnosed with blood cancers and other life-threatening diseases. For many patients, treatment through clinical trials provides hope and a potential cure.

But finding clinical trials can be challenging, so the NMDP/Be The Match partnered with the Jason Carter Clinical Trials Program (JCCTP) to help patients find and join clinical trials. At the heart of the JCCTP is a patient-friendly website, which is marking its one-year anniversary in July.

How the JCCTP website helps patients and their families

More than 250,000 clinical trials are listed on the U.S. government’s ClinicalTrials.gov website. However, these trial listings are very technical and patients have a hard time determining if they are eligible to join a particular trial. To make it easier on patients and their families, NMDP/Be The Match has found the most relevant clinical trials for patients with blood cancers and blood disorders and rewritten them to make them easier to understand. In the first year of the program, over 1,200 clinical trials have been added to the JCCTP website in a way that makes them much more accessible for everyone.

Financial assistance to help with travel to clinical trials

Last fall, The Drs. Jeffrey and Isabel Chell Clinical Trials Travel Grant was created in partnership with the JCCTP to provide financial help to qualified patients. The first travel grant was awarded in November and the patient received help paying the necessary travel costs for clinical trials, including:

  • Patient and companion air travel: booked by dedicated travel agents
  • Ground transportation: gas, parking and public/mass transit (bus/train/cab/etc.)
  • Accommodations: hotel, temporary housing and incidentals

Recognition for the JCCTP

In May, NMDP/Be The Match was presented with the Innovation Programs Award for the JCCTP at the 2018 Institute for Healthcare Advancement Health Literacy Conference. This award shows just how important it is to have a program that offers the much needed assistance to those that are seeking more information on how to find the right clinical trials.

Other features of the JCCTP

Even after using the search tool to find clinical trials that may be a good fit, patients and their families may have more questions.

As part of the JCCTP, NMDP/Be The Match has a full-time Clinical Trial Patient Education Specialist to provide free one-on-one support by phone and email to help patients and families find and join clinical trials.

Scott Kerwin, MN, RN, CCRC, CCRN, is the JCCTP Clinical Trial Patient Education Specialist, and he says that the most valuable help he provides is navigating the clinical trial system. “Because of my many years of working in hospitals as a bedside and clinical research nurse, I know how the system works,” he says. “I know how to contact the right people in the right roles.”

To contact Scott, call 1(888) 814-8610 or email clinicaltrials@jcctp.org.

About the Jason Carter Clinical Trials Program

The JCCTP is funded by the Carter family, in memory of their son and brother, Jason Carter, who lived with leukemia for more than 4 years, passing away in May 2016, at age 28. He participated in 2 clinical trials, which gave him more time with his family.

3 Responses to “Jason Carter Clinical Trials Program: One year of helping patients find clinical trials”

  1. Sandra Garber says:

    I would like to be a part of your program and donate marrow if needed .

  2. Elaine Hurge says:

    Yes I would like to be a part of your bone marrow donation

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