Donor Stories

Posted November 19th, 2010 by Be The Match
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12 Responses to “Donor Stories”

  1. Sarah Gengler says:

    Is there a list of family donors that will shows the matched donors to a CLL patient? ie: family members?

  2. Crnila says:

    Donors saved my son’s life. I just wanted to express my gratitude.

    • Arife says:

      Many of the International Marrow Donor Registries share potential donor lists for lsboispe patient matching. The U.K. and U.S. registries certainly do this.If one does register, remember that it is really a long-term commitment to be available for future individuals who need this treatment. Essentially you would be registering for people just like Amit.It is actually a match of adult stem cells that is important, not the bone marrow per se, bone marrow is the source of adult stem cells. The donation process involves harvesting these stem cells to be transferred to the patient. Becoming a potential donor involves submitting a swap (or blood sample) so that a small portion of DNA can be analyzed to determine the genetic signature for stem cell matching. This is also why matches are highly dependent upon ancestry.

      • Tom says:

        I want to correct this a bit. It is not the DNA thay use from the swab for the most part but the HLA. (human leukocyte antigen)

        The HLA is used in rejection of donations. So non-related people can match because the key is if the recipient will reject the donation or not.

        The initial test is for a preferred match of 6 markers, if there are more possible donors, great.

        second test is more refined. they test for 10 specific markers. from that they take the ones with the most matches. if they have a two 9/10 matches then it goes to health and age. (younger donors are better)

        Ancestry does matter but it is not the key component.

        I was a US donor and my match was in Germany.

  3. Health and Fitness says:

    These are truly inspiring true stories where we can get so much inspiration. Inspiration and giving to hope to anyone who have lost due to certain predicament.

  4. jessica b says:

    I’ve been on the doner list sence 2005..I recived a call 2 weeks ago that I am a match for a 22 year old boy with lukimea….im going to be 30 next week and its a great birthday gift to get that call…. just waiting on the paperwork as to the next step at giving this boy his life back

  5. Scot says:

    Jessica,
    that is awesome!!! I hope it is everything you thought it would be.

    I was on the list for about 17 years before I got the call. It was a magnificent feeling to give.

    My oldest daughter turned 18 3 years ago, and she joined then. She is waiting….. impatiently to be called.

  6. Laura K. says:

    In June of 2010 I was a PBSC donor to a 58 year old man with Non Hodgkins Lymphoma. For the past 2 years I have been trying to get in contact with him but never had any luck. Well miracles do happen…I have been fortunate to finally come in contact with my recipient. He is alive and well, off all meds and as of his last checkup 3 weeks ago remains cancer free. I feel so fortunate once again..the first time, two years ago, to be able to help someone and now to be able to talk with him and have a lifelong relationship. I would donate again if called upon and I encourage everyone out there to join the registry and become regular blood donors!! Thank you to Be the Match for all that you do.

  7. Erin K says:

    I donated to a 52 year old French Man last April. I hope to get in touch with him after the year wait is up! I hope I will be able to donate again to someone who needs it. Best thing so far I’ve ever done in my life!!!

  8. Charles Thornton says:

    My wish is that if you are thinking of joining the Bone Marrow Registry that this can be an inspiration for you and will help you make a truly life saving decision.

    I was called 12 years ago for a little girl that was 9 years old and in need of a BMT. That was all I was told and asked if I would be willing to help as I was a perfect match for this little girl. My decision at the time was simple and easy having to small children of our own and a beautiful understanding wife that always supports me in all that I do. I said yes and did the procedure at Miami Children’s Hospital, stayed one night in the hospital then drove back home to SWFL the next day.

    A year later after the transplant, I received another call asking would like to know who my recipient was and if I would like to meet her and her family one day. That is when I found out her story what she had to go through. How everyday was a fight just to survive and make it to the next day. I would learn that she was receiving blood transfusions just to make it day to day. Francoise Anemia is a terrible disease that no child should ever have to go through, Doctors had ask the family to be prepared for the worst and make necessary arrangements for their little girl. I still to this day cannot grasp the thought or how I would react to facing these kind of decisions if it were my child.

    The strength of this family I would later learn would amaze and humble me beyond belief. They are now and will forever be a part of our family. My recipients mother was taking care of two very young children at home and spending most of her time in the hospital with her oldest daughter holding her every step of the way. While my recipients father was overseas fighting for our country and defending the freedoms that we enjoy so much today. As a parent I could not imagine going through so much, as this family had done for so long.

    When I first met my recipient she told me one of the things she wanted to do the most after her transplant was to climb a tree that she could only see looking outside of her window in the hospital when she was sick and be able to play with her sisters outside with no fear of what her body was going through.
    As of today that little girl has come so far and now has graduated high school and was just married a couple months ago to a very wonderful young man. She has grown into a very beautiful and truly a special person, one who inspires me every day.

    We take for granted a lot of things in life and after seeing what a difference a BMT can make first hand it is truly humbling. I have donated 2 times now and can no longer be on the registry, but would do it again if needed. My philosophy was very simple in making the decisions I did, what if it was one of my children or family members and I was faced with the same kind of decisions. For a family to choose to have a BMT it is in most cases a last effort to save the life of a loved one.

    I truly hope this gives a little insight and understanding to how important your decision can be. If you can, Please make the decision to join the registry. It can make a huge difference in the life of another family that could need you more than you may ever know.

    Charles Thornton

  9. Kathy Musson says:

    2 years out of Stem Cell Transplant for AML. I did write a thank you note to my donor…have not heard back and have no way of knowing if she/he ever got it or knows how GRATEFUL I am for his/her selflessness. What an awesome gift. THANK YOU to all donors, but especially mine.

  10. Michaele Enwright says:

    I want to say THANK YOU to my husband’s donor his transplant was yesterday. You are an amazing woman to give him this prescious gift of life xoxo I will be forever grateful to you. I want you to know that he is doing great. All My Love Michaele Enwright

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