You can help ensure older patients get the transplant they need

Posted April 18th, 2017 by Be The Match and filed in News
Show Content

The number of older patients receiving a marrow transplant has increased significantly in recent years. But due to Medicare payment policies, transplant centers are losing thousands of dollars on each Medicare beneficiary they treat making it difficult for them to continue performing transplants for these patients.

Ed, marrow transplant recipient

In 2015, 138 hospitals around the country provided this life-saving therapy to nearly 1,200 Medicare beneficiaries. Patients like Ed, who received his transplant when he was 68 years old.

“Our oldest grandchild was 6 years old and the youngest was just 9 months when I had my transplant,” commented Ed. “I’ve been able watch them grow up and they’ve had the chance to know their grandfather as a person, not a picture.”

Ed says his transplant has given him the gift of life and the gift of time. And he’s making the most of it. In addition to spending time with family, he is very active in his church and has volunteered over 400 hours with Be The Match: connecting with patients, transplant centers and legislators.

“After my transplant, I’m more aware of the issues which people [like me] can face, and I’m trying to give back,” said Ed.

Medicare patients need your help
We need your help to ensure patients who are Medicare beneficiaries have the same access to transplant as those who have commercial insurance.

What Medicare reimburses hospital transplant centers does not cover the costs of searching for a donor and obtaining their cells. If CMS does not reform the current payment policy for transplant hospitals will not be able to keep treating Medicare patients, like Ed.

This spring, the Centers for Medicare and Medicaid Services (CMS) will determine the Medicare payment policy for inpatient transplants for the coming year.

Please submit a comment letter to CMS urging them to adequately reimburse for marrow transplant so patients can get the care they need. You can customize our pre-written letter and send it directly to the decision-makers at CMS.

We need comments from passionate people like you to help CMS understand how important this is. Thank you for your support!

Interested in legislation and policy changes that affects transplant patients? Learn more at BeTheMatch.org/advocacy.

Why I do what I do for Be The Match

Posted September 27th, 2016 by Be The Match and filed in Donor Stories, News
Show Content

As told by Jeff, donor and advocate

“Save this girl’s life and I’ll be an advocate to the cause for the rest of mine.” This was the short prayer whispered just before I was anesthetized to harvest my bone marrow that was perfectly matched to a sixteen-year-old girl fighting leukemia. Eight years later, I’m please to share that my recipient, Kim is living life to the fullest with my adopted immune system. 100% engrafted and cancer-free!

Within a few days of the procedure life returned to normal, but my appreciation for it was different. Somewhere out there was a young lady fighting for her life and I knew that her family was asking themselves the same questions that I was. Were my cells good enough? What would happen if they weren’t? At the very least I knew that the procedure would give this family something that they had longed for, which has been confirmed by countless other families fighting a blood cancer. For many a bone marrow transplant can be a cure, but for all it provides hope.

To me, a bone marrow transplant is the perfect fusion of fate, science and miracle. Fate, to know that a compatible stranger chose to join a bone marrow registry; science, to facilitate the process; and miracle, to know that these life generating transplanted cells can alter the course of another person’s mortality. Believing this – I had to get involved further.

I started my advocacy at marrow drives, lending a hand to dismiss the fears about the donation process. As we all benefit from talking to others with firsthand experience; attending these drives helped educate and answer questions of those interested but concerned about the procedure. Several people join the registry, as I did, for someone they know who is in need of a transplant. At these drives, I help folks see the “Pay It Forward” concept. Although you may not be a match for the person you know, you could be for someone else in need, just as another person joining at another drive somewhere out there may be a match for your acquaintance.

I am involved with the CIBMTR (Center for International Blood and Marrow Transplant Research) which is the research program of Be The Match. As a consumer advocate, I’ve participated over the last five years helping to translate information, such as outcomes from a clinical trial into a readable format for the typical lay person to understand. It was an honor to be asked this past year to co-chair this advocacy group.

I’m also very proud of the money raised by co-chairing a local Be The Match Walk+Run event for the past three years. These events bring together survivors, caregivers, patients and donors to celebrate victories, honor those lost and help recruit new potential donors to the registry.

Finally, I take the most pride in my volunteering efforts as a stem cell courier. The transplant process is a logistical orchestra of physicians, scientists, lab techs, collection center personnel and transplant hospital staff all coming together for a patient in need. It is a privilege to hand-carry these coolers containing someone’s “second chance” from their altruistic donor to their intended recipient. A trained volunteer courier is as close as it gets to being Santa Claus.

If you read this chances are you’re already somehow involved with the cause. Mine are but a few of the many ways to help and I encourage all to engage. Maybe it’s writing to congressional members in support of NMDP/Be The Match’s legislative activities; or it’s reaching out to a local recruiter and helping in your community. Whether you’re a caregiver, a long term survivor or a fellow donor – we all have unique experiences that are vital to the next patient in need. As for me, I’ll keep holding up my end of that prayer.

Meet An Advocate: Jeff Haertling, St. Charles, MO

Posted December 17th, 2013 by Be The Match and filed in Donor Stories, News
Show Content

Jeff and Kim photoJeff Haertling had a certain person in mind when he joined the Be The Match Registry® in the fall of 2007. The daughter of a friend had been diagnosed with leukemia. Jeff hoped to be the matching donor who could save the girl’s life. But in the end, no match could be found for his friend’s daughter, and she passed away in 2008.

In 2009, Jeff got another chance to save someone’s life—this time, a stranger’s. It started with an unexpected call from the registry: Jeff was a perfect match for a 16-year-old girl battling acute lymphocytic leukemia. She desperately needed his marrow.

Jeff didn’t hesitate. He donated his marrow on Oct. 20, 2009 to save Kim Christensen’s life. On her 18th birthday, Jeff finally got to meet his “mini me” and Kim finally got to meet her “parts department.”

“Aside from having kids, this has been the most important and rewarding thing I’ve done in life,” Jeff said.

He’s since become a passionate advocate for Be The Match®, contributing to nearly every aspect of the organization. He is a volunteer Be The Match courier, helping to safely transport potentially life-saving cells from the donor’s location to the recipient’s location. He is also co-chair of the St. Louis Be The Match Walk+Run, and a member of the Consumer Advocacy Committee for CIBMTR® (Center for International Blood and Marrow Transplant Research®), a research program of Be The Match. Additionally, Jeff regularly hosts donor registry drives in the St. Louis area.

Last July, Jeff traveled to Capitol Hill with Kim and Be The Match representatives and advocates. There, they met with federal legislators and urged them to continue vital congressional funding for the organization.

“Being able to save someone else’s life has dramatically changed my life as well,” Jeff said. “Today, my goal is to spread the word about Be The Match, so more people can beat blood cancer and thrive like Kim.”