Taking a leap of faith for her cure

Posted June 12th, 2017 by Be The Match and filed in Patient Stories
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In 2008, twelve-year-old Amber’s fight against sickle cell disease had gotten to the point where she had suffered a stroke and had many surgeries.

Amber, transplant recipient

For the next two years, she and her family found themselves anxious as they were educated about a bone marrow transplant as a potential treatment option.

“My mom was scared,” Amber said. “It was a leap of faith.”

When doctors told the family that a 10/10 match was found, Amber put her nerves aside and prepared for transplant.

“I was afraid of losing my hair, chemotherapy and losing my friends,” she said. “I didn’t really know who else was going to be my match – if this unrelated donor would not have done it.”

After her transplant, Amber spent a month in the hospital before she went home to recover.

“It was difficult but, well worth it,” she said.

Now, as a healthy college student at George Mason University, Amber offers this advice to sickle cell patients contemplating a bone marrow transplant.

“Don’t give up hope,” she said. “You feel like you are going to be in pain forever but, just stay hopeful. You are already going to be in pain forever so, just hang in there for the transplant.”

While Amber has not met her donor, she said her entire family is looking forward to thanking the person who saved her life.

“I wouldn’t even be able to say anything – I would just cry,” Amber said. “I would tell them how thankful and how blessed myself and my family is because of this. This is not just about the patient who has sickle cell, this is about the family as well. I am so blessed and so thankful.”

A bone marrow transplant is the only known cure for SCD. Join the registry and be someone’s cure!

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