Your holiday gift guide

Posted November 14th, 2016 by Be The Match and filed in News
Show Content

Looking for a way to give back while you shop for gifts this holiday season? Be The Match has a few ways to help you do just that.

Shop Be The Match. Browse our online shop for the latest Be The Match branded gear.

One-of-a-kind Be The Match ornament available through our online shop

One-of-a-kind Be The Match ornament available through our online shop

From hats to bags to drinkware, a portion of the proceeds from any item you purchase helps patients in need by adding more marrow donors to the Be The Match Registry, helping patients with uninsured costs and supporting life-saving transplant research. In November, you’ll receive a one-of-a-kind Be The Match ornament when you spend $40 or more in the shop. Sign up to stay connected to the latest products and special promotions.

 

Volume 8 of our holiday CD helps raise funds for patients in need

Volume 8 of our holiday CD helps raise funds for patients in need

Holiday CD Sampler. Get in the holiday spirit with our 8th volume of “A Minnesota Holiday” CD. All of your favorite traditional holiday songs are featured by artists from the Midwest, with a bonus track from Javier Colon, season 1 winner of hit TV show The Voice. A portion of all proceeds will benefit Be The Match and our mission to help save lives through cellular therapy. Available now for digital download on iTunes and in MP3 format. All Minnesota Kowalski’s Markets have the CD available for purchase starting November 25th.

Give back while you shop with AmazonSmile

Give back by shopping with AmazonSmile

AmazonSmile. Support Be The Match by shopping with AmazonSmile. Simply click on the link below to buy the items you already have on your list, and for each eligible purchase, Amazon will make a donation to the Be The Match Foundation. Start using Amazon Smile today and show your support for patients in need.

 

“Thank You Will Never Be Enough”

Posted November 10th, 2015 by Be The Match and filed in News
Show Content

Dalton(R) family_Sandy-Jared_100Sandy and her husband Jared try not to take anything for granted. They believe that even the most trivial things, like walking outside or going to the store, are moments to be grateful.  “You value life so much more when you have watched someone fight for theirs,” said Sandy. Since their son, Dalton was eight weeks old, Sandy and Jared have watched him battle for his life and, ultimately, win.

When Dalton was only two months old, he started to experience frequent bacterial and skin infections. After months of appointments, which produced few answers, doctors finally learned that Dalton’s symptoms were a result of a much larger issue: a genetic immune system disorder called severe combined immunodeficiency (SCID). The diagnosis was very scary; Sandy and Jared were told that if untreated, babies with SCID usually die within a year.

Dalton(R) with Dennis(D)_348Dalton’s best hope was a marrow transplant. Unfortunately no one in Dalton’s family was a suitable match. Dalton’s doctors then turned to the Be The Match Registry to find an unrelated marrow donor.

Thankfully, Dalton was lucky. Multiple matches were identified and shortly after, Dalton’s doctors requested additional testing to determine which donor would be his best chance for survival.

Before his transplant, Dalton underwent eight days of high dose chemotherapy to prepare his body to accept the new donor cells. While Sandy and Jared knew that a marrow transplant was Dalton’s best hope, watching their child suffer was emotionally taxing. For Sandy, the 100 days post-transplant were “the scariest and most stressful of my life,” she said.

After a long recovery, Dalton was finally able to return home. “You look at him now,” said Sandy, “and you would never know what he has been through. He has gained weight and has his hair back. He is making up for lost time!”

Dalton(R)-44Without a transplant, Dalton might not be alive. This September at the Be The Match Annual Gala, the family got the opportunity they had been waiting for – the chance to thank the stranger that saved their baby’s life. For the first time, Dalton, Sandy and Jared met Dalton’s marrow donor, Dennis, a fire chief from Boise, Idaho and got the chance to thank and hug Dennis for the gift he gave Dalton.

This Thanksgiving, Dalton’s family is thankful for Dennis and all Be The Match supporters.  “Thank you will never be enough,” said Sandy, “but it is all we have. It comes from the bottom of my heart.”

This Thanksgiving, you can help give a child the gift of life by supporting the life-saving work of Be The Match. Your gifts help more patients get the marrow donation they need.

*If the donor center allows and both parties consent, a donor and recipient or a recipient’s guardian must still wait one year before they can exchange contact information and meet in person.

Jade is a recent transplant recipient. This is her story.

Posted October 8th, 2014 by Be The Match and filed in News
Show Content

fight-transplantday2Super Wonder Jade

“Never. Ever. Givvvve up! Never. Ever. Givvvve up!” This is the cheer of smiling, bubbling, 4-year-old Jade. What is she cheering for? Courage to beat her cancer.

A fighter from day one, Jade’s journey began with unexplained episodes of limping, joint pain and fever. An otherwise healthy toddler who could run circles around her older brother, Jade’s parents, Jaytoe and Taneika, were puzzled. Multiple visits to the emergency room and they still didn’t know what was wrong.

On January 5, 2012, a few days after celebrating the New Year, Jade was admitted to the hospital for a persistent eye infection. Trusting their gut, they asked for additional tests. “We figured while we were there, why not get to the bottom of it once and for all,” says Taneika.

Eager to help, Jade’s doctors listened to the list of symptoms and explored many options. Ultimately, the news was devastating. Little Jade had cancer—acute myeloid leukemia (AML). “We were floored. It was hard to swallow because she wasn’t even two years old yet. We were still getting to know her and watch her grow, but hearing this diagnosis almost felt like a death sentence,” says Taneika.

wonderkids2Eight months and five rounds of chemo later, Jade was in remission. Like any parent, Taneika was overjoyed, but she was worried that it was too good to be true. They filled their days with fun activities like visiting museums, baking cookies, painting and dancing to Jade’s favorite tunes. “Our family had a renewed sense of living life to the fullest, but I always felt like I was looking over my shoulder.”

When Halloween arrived, Jade was old enough to help pick her costume. “She absolutely loves dressing up and equally loves ‘saving the day,’” says Taneika. “Familiar with traditional princess costumes she was soooo excited to see the warrior princess Wonder Woman costume.” Completely thrilled, Jade declared herself “Super Wonder Jade” with powers to fight the “bad guy cells.” The nickname stuck and Jade continues to call herself this today.

Relapse

On March 19, 2014, just a few weeks shy of celebrating Jade’s fourth birthday, her leukemia resurfaced. “It was harder to hear the news the second time. We thought we had it beat, but we didn’t,” says Taneika.

Immediately, Jade’s doctor’s explained that a marrow transplant was her best shot for a cure. “They told us that relapsed AML was more difficult to treat. They also told us the likelihood of finding an unrelated donor was very low because of how uniquely made Jade is, because of our ethnic backgrounds.” The frightened family knew it would be a tough battle, but brave Jade took the news with grace.

“Jade returned to the oncology floor like she owned the place,” says Taneika. “Wandering the halls, serenading the staff at the nurses’ station, and quickly finding her place in the art room.” But, despite the familiarity, things were different. Jade was a big girl now. “The halls were the same, the staff was the same, but Jade had the ability to ask questions like: Why are we here? When are we going home? Why can’t my friends come over?”

Thankfully, Jade’s cheerful nature quickly won over and she settled into her routine filled with activities such as singing “Let It Go” as she said good bye to her hair, swishing “magic mouthwash” to lessen the pain of mouth sores and earning more than 500 beads of courage—one for every procedure.

In her journal, Taneika wrote, “Jade was so playful, so brave and so strong throughout her treatment, even after a rough chemo session. And she would just say, ‘I’m smiling for me.’ We absolutely believe that her spirit and attitude helped her heal… helped strengthen our faith and our resolve that she would be cured.”

day1transplantadmission2Re-birthday

Finally, on July 3, after months of searching, transplant day arrived. Unable to find an adult donor, doctors located a 5 out of 6 cord blood match.

Pronounced Jade’s “re-birthday,” the special day was filled with celebration banners, cupcakes and Jade’s favorite thing in the world—music. “She proceeded to dance for an hour straight, grabbing our hands and pulling us to the dance floor one by one,” says Taneika.

Exhausted, Jade finally fell asleep as nurses hooked up an IV pole for her new, life-giving cells to drip slowly into her body. “When you hear the word ‘transplant’ you think surgery…sedation…but it was not like that at all,” says Taneika. “The whole process took less than two hours.”

The Jade Parade

Twenty-four days after transplant, Jade was allowed to make her first trip home. Having seen parade-like, end-of-treatment celebrations before, Taneika was overcome with emotion as Jade exchanged her Beads of Courage for her requisite sunglasses, high filtration mask and tiara. “She went out in style, leading the staff decisively toward the elevator cheering, ‘I’m brave, I’m strong, I’m ready for whatever comes along,’” says Taneika.

By day 29, Jade was 100% donor cells. She did experience some early setbacks with graft versus host disease (GVHD) and liver damage, but Jade is currently healthy, happy and cancer free.

snowday2Forever Thankful

Taneika is at a loss for words when thinking about the gift their family received. “Thank you seems inadequate… We wish there were words beautiful or accurate enough to fully express our gratitude for this incredible gift — for saving our daughter’s life and keeping our family whole,” she says.

“With each milestone that Jade reaches, every smile that she cracks, each hug that she shares with us, we are eternally grateful to the mother who made this possible when she donated her newborn baby’s cord blood, to Be The Match for facilitating her gift, and to Jade’s medical team for their incredible support. We thank God for them all. We will certainly be reflecting on that this holiday season and hoping not only for Jade’s continued remission, health and overall rock-stardom, but also for a match and a cure for all of the parents, grandparents and children who need it.”

The family is also grateful people like you who support Be The Match by making a financial gift. “Thank you for helping to give meaning to Jade’s journey. We often ask and wonder, ‘Why Jade? Why did this happen to our sweet girl?’ There will never be a satisfactory answer to those questions, but we are so heartened that her story, her spirit inspired you to make a gift that will help heal another family like ours that has been turned upside down by cancer.”

Help kids like Jade. Give a child the gift of life.